There’s a saying, “Timing is everything in life.” This could not be more true for Kali and Kaiden, Antonio and Estella-Rose, Marshall, and Harlow (plus her big brother Jordan) – babies born with Spinal Muscular Atrophy (SMA) who have received a gene therapy at Akron Children’s, since it was approved by the FDA […]
Inclusion is key to Piper’s legacy
Some people spend years trying to find their mission in life. For sweet Piper Grace Hoefler, it took just 27 days. Piper passed away from the effects of Spinal Muscular Atrophy (SMA) Type 0, but her legacy lives on in books about inclusion donated by her family’s charitable organization, Piper’s Key. “I didn’t want to […]
