Our visit with the Myelo Clinic at Akron Children’s last week felt like we were prescribed a small dose of reality. Our hearts long for the hope that Jordan’s head, bladder, bowels, and legs will do more than the diagnosis tells us. I came prepared to ask the question about where each specialist feels Jordan’s […]
Twice the love on Valentine’s Day
It was so exciting to enjoy Valentine’s Day with my two valentines this year. Randy is an amazing husband and daddy. I love to watch him interact with Jordan. The days to come are going to be a joy to watch as he shares his heart with his son. Jordan, my sweet baby valentine, makes my […]
Busy day at the myelo clinic
What a long, long, long day we had last Thursday. We left at 7:30 a.m. and arrived back in Seville at 2:30 p.m. The day started off in radiology. (I’m tempted to become an ultrasound technician just so I can follow what’s happening on the screen.) After the ultrasound tech completed what she thought needed […]
