In just a matter of weeks, Jamie Mariol and Ronnie Hitchings, of Massillon, went from having mild concern about their 4-year-old daughter, Raven, not using her left hand as she typically did, to learning she had a golf-ball size brain tumor. Before they could process this “deer in the headlights moment,” as Jamie called it, […]
Hannah takes it all in stride
At 2 days old, Hannah Jabbour had surgery to close the half dollar-sized opening in the base of her spine, but only time would tell how spina bifida would impact her everyday life. “While in the NICU, Hannah also needed a shunt placed to drain the spinal fluid from her skull due to her hydrocephalus,” said Hilary, […]
Prepared to be Inspired: New Mom Does Whatever it Takes for her Newborn Twins with Spina Bifida
On Sunday, mothers will take center stage, showered with flowers and kind words for the important role they play in all of our lives. Take a moment to admire Linna Nieves, who especially embodies the sacrifice, determination and unconditional love which are integral qualities of all great moms. Linna, an account relationship associate at Huntington […]
Here We Go Again and Again
For some reason the ease that we might feel from having Jordan’s shunt replaced was short lived as this was the first he had expressed discomfort after his surgery. The neuro team at Akron Children’s told us there is a high rate of malfunction in the first year. This doesn’t really put your mind at […]
Unexpected ER visit leads to shunt revision
Christmas has always taken on a special meaning in our family. Of course, children give a different prospective as well. We have tried to bring the true meaning of Christmas in our home.