We attended our first Kids are #1 Run event at Akron Children’s this weekend after being invited to join Team Sofie. What a variety of vendors and activities for the kids – face painting, hair spray dyeing, animals and creating children’s names with sticky letters and building blocks.
Archives for 2012
Still super – Jordan on the move with leg braces
Jordan has been doing well with his super boots. I am amazed at how these boots have given him freedom. As Randy and I were getting ready to go to work last week, Jordan was playing in his little area and tipped over.
Song speaks to my heart
As I was driving my car this week, thinking of what kind of news we may hear from the urology department at Akron Children’s, my anxiety fluctuated. I attempted to prepare myself for either answer. Do you want to hear the news you need to cath so you’re not constantly looking for signs and symptoms? Or do you want to hear keep monitoring?
Life is good with Jordan’s “super boots”
I had a hard time sleeping last Thursday night due to my excitement of Jordan’s appointment to get his ground reaction AFOs (Ankle Foot Orthosis). These leg braces may be the key to strengthening muscles that he has never been able to use correctly.
Springing ahead after good week of appointments
We had another positive week of appointments last week. Jordan’s 9 month appointment showed his height and weight to be in the 50th percentiles. He was injected with one shot this time, and as usual, we are pleasantly sad by his reaction to getting a shot. We are happy that he feels the shot but […]
AFOs are AOK
Jordan’s appointments went well. We met with his dermatologist to recheck the birthmark on his tummy. He said that it had grown very slightly, but that comes along with the growth of his body. Again, he was not concerned at this point and will recheck it yearly, unless our lil’ Peanut has surgery, at which time […]
