I’ll admit I’m a person who doesn’t listen to all of the lyrics to a song the first 20 times I hear it. Usually I catch some of the repetition to the chorus or move my head to the beat, but actually listening to the heart of the artist’s words isn’t something I pride myself in doing.
As I was driving my car this week, thinking of what kind of news we may hear from the urology department at Akron Children’s, my anxiety fluctuated. I attempted to prepare myself for either answer. Do you want to hear the news you need to cath so you’re not constantly looking for signs and symptoms? Or do you want to hear keep monitoring?
Of course we want to keep monitoring, but it takes a toll on our emotions as we approach our appointments and wait for news. Right when my mind started to wander, a song by Chris Tomlin came across the radio waves and the Lord spoke to my heart:
Be still, there is a healer
His love is deeper than the sea
His mercy, it is unfailing
His arms are fortress for the weak
Let faith arise
Let faith arise
I lift my hands to believe again
You are my refuge, You are my strength
As I pour out my heart
These things, I remember
You are faithful, God, forever
It brings me back to the verse that says, “Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God.” (Philippians 4:6-7)
The persistent person that I am called the urology department four times trying to get someone to call me back due to being told we would hear something Monday night or Wednesday. When Thursday arrived I took the time to call to see if we could get the results.
Amanda, Dr. McMahon’s nurse, called me back late Thursday afternoon to let us know that Jordan’s pressures are still low. They are in fact at the same pressure that they were when he was a month old. This basically tells us that we will schedule the exam again in a year and continue to monitor for infection, and return for ultrasounds to monitor the kidney every three months.
It was a relief to know that we have not overlooked signs of infection, and encouraged that the sometimes fast diaper changes to avoid a second pair of clothing are worth it. God has truly blessed us with this little man.
Our prayer is that no matter what the results, we are here together as a family and understand that God’s will, will be done.
Read more about Megs’ and Randy’s journey of raising a child with spina bifida through her blog, Labor of Love.
