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Akron Children's > Departments & Programs

Leukodystrophy and Rare Neurologic Disease Clinic

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Leukodystrophies are a group of more than 50 neurological disorders. These disorders are inherited and affect the myelin, the protective covering on nerves, in the brain. Leukodystrophies are progressive and usually cause loss of neurological function in infants and children.

The Leukodystrophy and Rare Neurologic Disease Clinic is multidisciplinary and includes providers from neurology, complex care pediatrics, a genetic counselor and a nurse coordinator. Additional specialties will be added based on patient needs.

The clinic provides:

  • Longer visits
  • Care coordination
  • Concierge services for families who often require scheduling multiple specialist visits
  • Help navigating the search for clinical trials and research opportunities

Department: 330-543-8050

PHYSICIANS/PROVIDERS:

Matthew Ginsberg, MD

The James F. and Marguerite A. Pearson Endowed Chair in NeuroDevelopmental Sciences for Rare Diseases; Co-Director, Neurofibromatosis Clinic; Pediatric Neurologist

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 Accepting new patients

P. Cooper White, MD, FAAP

Director, Locust Pediatric Care Group; Pediatrician

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OTHER PROVIDERS:
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 Accepting new patients

Madeline Frederick, MS, CGC

Licensed, Certified Genetic Counselor

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