Cardiac Neurodevelopmental Follow-Up Program

Research shows a link between congenital heart disease and neurodevelopmental issues that is first apparent in very young children. This program addresses these long-term issues, as well as the possible impact of early heart surgery, through early intervention services.

Close developmental follow-up is very important during the first 3 years of life and should continue well into school age. Getting an early start helps to address issues and lay the foundation for future learning and success.

Children referred to our program receive a complete evaluation of their abilities and an individual care plan to best meet their needs. This evaluation is performed by our neuropsychologists. It can last for several hours and tests for developmental impact in these areas:

• Cognitive functioning
• Gross and fine motor skills
• Play and social skills • Attention
• Speech and language development
• Behavior
• Memory and learning
• Academic performance in reading, writing and math

Following the evaluation, our neurobehavioral specialists will meet with you to discuss results and treatment recommendations as well as provide you with a written summary. We also send a report of your child’s visits and the care provided to your child’s pediatrician. If additional resources are needed to help your child, our team will provide appropriate referrals.

We recommend that babies and toddlers be evaluated every 6 months through age 3 years, then once a year thereafter until at least age 6 years. If an appointment is not made before you leave the hospital following your child’s heart surgery, you may be referred to our program by your pediatric cardiologist, your child’s pediatrician or your family doctor