Akron Children's > For Families & Patients > Research > Pediatric Clinical Studies > Open Clinical Studies
SHARE Pediatric Palliative Care Study
Full IRB Study Title:
Pediatric Palliative Care Research Network SHARE Study
IRB Study ID: 1372251
A study designed to look at patient symptoms, parent distress, goals of care, and hospital cost trajectories.
Study Sponsor:
- National Institutes of Health
- National Institute of Nursing Research
- Children’s Hospital of Philadelphia
Who May Qualify:
Patients receiving palliative care and their parents.
Who Does NOT Qualify:
Patients not receiving palliative care.
Lead Investigator
Sarah Elizabeth Friebert, MD
Pediatric Palliative Care Physician; Sarah Elizabeth Friebert, M.D. Leadership Chair in Pediatric Palliative Care
Haslinger Family Pediatric Palliative Care CenterPediatric Neuromuscular ClinicMitochondrial Center
