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Akron Children's > For Families & Patients > About Akron Children's > Newsroom > Watch & Listen

Valentines for Vinny: Community supports boy battling rare disease

In August 2023, five-year-old Vinny Demando became the first Ohio recipient of a breakthrough gene therapy for Duchenne Muscular Dystrophy during a stay at Akron Children's. Now seven, he is homeschooled but his mom didn't want him missing out on Valentine's Day. See the response she got from the Massillon community following her post on social media.

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